Whilst there have been improvements in treatment in recent years, glioblastoma still has a dismal prognosis. It is the biggest cancer killer in under 40 and in children, and yet it receives a mere 0.7% of the research budget! No wonder there is no cure and no wonder we have not made inroads into improved survival as we have seen in others cancers like breast and prostate, which have had well publicised, successful campaigns, and childhood leukaemia which used to be the biggest killer of children but which has had massive, successful research input; brain cancer has now taken over as the most deadly disease, yet most people are totally unaware of this.
Unlike most other cancers, incidence of Brain tumour is rising, and survival rates are not substantially improving. The disease strikes without warning; fit young people and children die quickly; young lives are cut short and families are devastated. This is a truly horrible cancer and most of the general public know nothing about it.
So please help me reverse this pitiful level of awareness and funding.
Some of you lovely people gave to my Just Giving page when i did the 5k obstacle race in March 2016 (Chiltern Warrior)and then in Sept when we did an 11 mile canal walk along the Grand Union Canal organised by the charity “Brain Tumour Research“ Time has rolled by and (unlike many dear friends who have walked this path with me) I am still here, still fit and well and active and outliving my prognosis. If you wonder ‘why me’ you may find some of my theories elsewhere on this blog but due to the lack of research nobody is likely to find any definitive evidence based answers here or anywhere else. This is what needs to change.
My latest mad idea is that I can run 5K in a Santa suit on 3rd December alongside a load of other santas all running for fun and to raise funds and awareness for their favourite charity. There will be hundreds running for the popular charities. I am running for a charity which supports brain cancer sufferers and their families called ‘Brainstrust’ Please support me and hundreds like me who live with this disease every day of our lives. For most it will have to be the relatives and friends who carry the baton for brain tumours. I run as a patient – getting impatient for change!
Please share the appeal as widely as you can either by directing people to my just giving page, or by sharing this blog page by simply clicking the ‘share’ button.
Anyone can give instantly, text TNYA77 £5 to donate £5 (or any sum you like by replacing the 5) or go to my ‘just giving’ site. In either case the funds will go directly to Brainstrust. Visit the charity website above for more info and other ways to support the cause at the ‘umbrella’ charity http://www.braintumourresearch.orgs which is involved in all aspects of research to try to improve the outlook for brain cancer.